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Kombucha Tea to...Gila Monster Spit? (POZ Magazine)

Kombucha Tea to...Gila Monster Spit?

by Mark de Solla Price

POZ Magazine July / August 2009

In the early days of AIDS, my friends and I searched desperately for treatments. We tried some pretty weird stuff, like Japanese kombucha mushroom tea. Then HIV meds appeared (and worked), and I grew accustomed to taking more traditional treatments in pills and shots.

But now, 26 years into life with HIV/AIDS, I have a slew of other conditions—including, most recently, diabetes. My damaged liver rules out various oral diabetes meds, so I inject a new drug, Byetta (exenatide). Doing background reading, I was transported back to those early days of HIV treatments with odd names and origins: Byetta is a synthetic form of the saliva of the venomous Gila monster—a protein in the lizard’s spit helps control blood sugar. Though recent FDA reports alarmingly link Byetta to cases of pancreatitis, it seems to work for me. Gotta love that lizard.

Inspired by Bumblebee Symbolism

Vinny and I have personally become inspired by the Bumblebee symbol on many levels. Perhaps you have noticed that we have taken to wearing a small 1½" golden Bumblebee pin, shown to the right.

The most visible part of most of every person's identities are who we are as individuals and then secondarily, who we are as members of our family, our circle of friends, our congregations and our larger community.

Of course our individual identity is a vitally important role, but there is another equally vital role: the role of the Bumblebee or Faithful Community Traveler.

The Bumblebee travels between various groups and communities and provides the cross-pollination. The interconnected tissue of life-force that actually creates the interdependent web of all existence, of which we are a part.

In the faith communities and the social justice communities, the “bumblebees” are those among us who travel between the campaigns, groups and congregations -- those of faith and those of no faith -- sharing ideas and passion. We pollinate with love and that is what makes our global metaphorical garden thrive. For Napoleon, the bee was a symbol of industry and hard work needed to build a great nation. Today, that symbol is even more urgently needed to heal and rebuild the planet.

Our twenty first century cultural view of humans in the Western World focuses on the value of the individual and of personal freedom. The Bumblebee’s world is one of community and collaboration. It’s no coincidence that there is a catastrophic decline in the world bee population -- today there are something like one-third the number of bees that there were a only a decade ago.

We all need to support our bees of all sorts – faithful bumblebees included!

You can purchase your own Bumblebee Pin through Amazon.com by clicking here and we'll even get a few pennies on the transaction.

Saved by Gila Monster Spit

On Christmas Eve my doctor called me with my latest diagnosis: I now also have Type 2 Diabetes. Going from an active life and 3-days-a-week at the gym to spending two years home-bound probably helped speed this genetic pre-disposition along.

Unfortunately, all of the usual oral diabetes medications are metabolized in the liver. Although I remain Hepatitis C undetectable viral load 64-weeks after treatment (yea!) my liver functions are still "wacky" from many factors including non-alcoholic fatty liver disease (NAFLD).

Luckily, there is a relatively new injectable diabetes medication drug exenatide (marketed as Byetta by Amylin Pharmaceuticals/Eli Lilly and Company) and for me it has been a wonder drug. After 90-days, my diabetes is well maintained and I've lost 15-pounds (of the 40-pounds I gained since starting Pegasys).

In my appointment with Marilyn Tucker-Viselli, my Dietician/Nutritionist, I proudly showed off the progress I've made on the graph of my glucose levels — using my LifeScan OneTouch Ultra2 Blood Glucose Meter (Johnson & Johnson) connected by USB cable to my Apple MacBook and then to the HealthEngage website.

Marilyn told me that Byetta is made from synthetic Gila Monster's saliva. Yup, I shoot-up twice each day with Gila Monster Spit, and I couldn't be happier to benefit from my new cold-blooded friend, pictured to the right.

On a spiritual level, it makes me realize just how interdependent I am with the web of all existence of which we are a part. How many other vital drugs are waiting in similarly unlikely species that we might loose forever as we endanger our planet.

It's not just that we might need what these creatures have to offer, they are part of who were are as living beings. I read recently that "Scientists estimate that 90 percent of the cells contained in the human body belong to nonhuman organisms - mostly bacteria, but also a smattering of fungi and other eensy entities. Some 100 trillion microbes nestle in niches from our teeth to our toes." (Colin Nickerson/The Boston Globe, February 25, 2008)

 

Presidential Inauguration at the legendary Apollo Theater in Harlem

Vinny and I quite literally won the lottery this week and we got tickets from Time Warner Cable to watch the Presidential Inauguration of Barack Obama telecast at the legendary Apollo Theater in Harlem. Since we weren't physically up for going to Washington, DC (not that we were invited), this is ideal venue that meets our physical limitations and our spiritual effervesce. For this exciting, historic event and we can't think of a better community to celebrate not just the arrival of Barack Obama in the White House but also for the beginning of a new era of civic engagement!

 

Mark and Vinny Holiday Letter 2008

This last year has been a difficult one for our world, our country and us personally. As we write this, like so many others, we are looking to the new year as the start of an exciting future filled with new hope and new enthusiasm for fundamental change and renewed health -- both for us and our world. For us this begins in just over a month with the inauguration of President Barack Obama. We take great comfort in reading www.change.gov and watching Obama’s YouTube videos.

As we wrote last year, in December 2007, Mark completed a very difficult yearlong successful treatment for hepatitis C. Thankfully, he became one of the lucky few to be effectively cured. Unfortunately, in the process it put a lot of stress on his various underlying medical conditions caused by living with (and treating) HIV for 25 years. The original plan was that Mark would be able to go back to work early in 2008. But now in addition to AIDS and polycythemia, Mark has cardiac hypertrophy, peripheral and autonomic neuropathy, orthostatic hypotension, and chronic extreme fatigue. His HIV is still well controlled. Bouncing back and being well enough to return to work is something of a moving goal still off in the future right now.

Testimony at Public Hearings on New York City Term Limits Legislation

Mark de Solla Price Testimony on October 12, 2008 Public Hearings on New York City Term Limits Legislation

Mayor Mike Bloomberg, Speaker Christine C. Quinn and Comptroller William C. Thompson, Jr.

Good evening. My name is Mark de Solla Price; it is a privilege to speak before you tonight and thank you for your perseverance at this late hour. I have lived in Manhattan since 1980 and live with my husband, Vinny Allegrini, in our small, rent-stabilized apartment in Greenwich Village since 1994. I’m speaking today in favor of extending current terms to being limited at three terms. I want to thank the Speaker Christine Quinn and City Council for the opportunity to hear from so many constituents like me.

Thirty years ago, U.S. Senator Hubert Humphrey said that “...the moral test of government is how that government treats those who are in the dawn of life, the children; those who are in the twilight of life, the elderly; those who are in the shadows of life; the sick, the needy and the handicapped.”

I am one of those people in the shadows of life. I have been living with HIV/AIDS since 1983 and have been medically disabled for the last two years. Vinny is also living with AIDS and on disability, but he is mainly homebound these days, so today, I’ll be speaking on his behalf as well.

Vinny and I are two of more than 100,000 people in New York City who are living with HIV or AIDS. That’s approximately 1 out of every 70 people in this city. In my part of town, it’s one out of every four gay men who are HIV-positive.

Op Ed on "Radicals of the '60s, '70s change with the times"

The Toledo Blade ran a story titled Radicals of the '60s, '70s change with the times on October 9, 2008, which got some hate mail that I found objectionable. I posted the following response:

Bill Ayers, Laura Whitehorn and other Radicals of the '60s, '70s change with the times"

If you believe in the theory of our justice system, as I do, then ex-offenders have already been justly punished for their crimes and hopefully are rehabilitated. It is our job as a just society, to help ex-offenders be constructive members of our society. That means working and living together with them. If they weren’t convicted (like Bill Ayers) then they must be assumed innocent. That’s our system. There are no throwaway people. Any other viewpoint is a self-fulfilling prophecy that causes recidivism.

As for Laura Whitehorn, not only has she paid her debt to society, the fact that after coming out of our unjust “justice system” she isn’t disillusioned, angry with society, and trained as a career criminal is a remarkable reflection of the quality of person she is. Instead, she’s been working tirelessly for the common good. That’s pretty uncommon. As an AIDS activist and author myself, I’m lucky to count Laura Whitehorn as a personal friend.

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